What Does a Spinal Cord Tumour Resection Involve?
Disclaimer: This article is intended for general information and peer support purposes only and should not be considered medical advice. Every spinal cord tumour, surgical procedure and recovery journey is different. Outcomes can vary significantly depending on factors such as tumour type, size, location within the spinal cord, extent of surgery, age, overall health and […]
Long-Term Sleep Problems After a Spinal Cord Tumour
Before my spinal cord tumour surgery, sleep was something I rarely thought about. I could generally go to bed, sleep through the night and wake feeling reasonably refreshed. Since my operation, however, a full uninterrupted night’s sleep has often felt much harder to achieve. Over the years I have heard from others who describe similar […]
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How to Pace Your Day When Your Legs and Energy Are Unpredictable (Pacing Guide)
Living with or after surgery for a spinal cord tumour often means your energy and walking ability can change from day to day. One day you feel reasonably steady, the next your legs feel heavy, slow, or difficult to control. This isn’t just normal tiredness. It’s neurological fatigue and learning how to pace your activity […]
Being Diagnosed with a Spinal Cord Tumour
A message for anyone recently diagnosed with an intramedullary or extramedullary spinal cord tumour If you are reading this, it is likely that you or someone close to you has recently been told you have a spinal cord tumour. That moment can feel overwhelming, frightening, and deeply uncertain. Many people describe it as their world […]
A Christmas and New Year Message
As the year gently folds itself away and the festive season arrives, we want to pause and speak directly to you, our spinal cord tumour survivors, carers, families, and friends. Living with the long-term effects of a spinal cord tumour can make this time of year physically demanding and emotionally complex. Pain, fatigue, altered mobility, […]
Understanding Sensory Changes After a Spinal Cord Tumour
Sensory changes are one of the most common – and often most confusing – effects of a spinal cord tumour. Because the spinal cord acts as the communication pathway between the body and the brain, any damage to these nerves can alter how sensations are felt, interpreted, or responded to. These changes can be unpredictable, […]
How Cold Weather Can Affect the Body After a Spinal Cord Tumour
People living with the effects of a spinal cord tumour may notice that cold weather affects their body differently now. Changes caused by central nerve damage, whether from the tumour itself or from surgery, can make winter temperatures feel more intense and trigger symptoms that are less obvious in warmer months. Understanding why this happens […]
Processing Emotions After a Spinal Cord Tumour
Processing Emotions After a Spinal Cord Tumour Living with the effects of a spinal cord tumour can be as much an emotional journey as it is a physical one. Surgery, radiotherapy, or the tumour itself can leave lasting changes in the body due to nerve damage. These changes often affect mobility, bladder and bowel control, […]
Nerve Pain Infographic
Living with Fatigue After a Spinal Cord Tumour
For many of us who have had a spinal cord tumour, fatigue is one of the most stubborn and invisible challenges we face. It’s not just being “a bit tired”; it’s the kind of deep exhaustion that can make even simple tasks feel like climbing a mountain. In my own experience, this fatigue can arrive […]
Nerve Pain: How To Manage It
Nerve or neuropathic pain can be commonly associated with a spinal cord tumour, both before and after treatment. This sensation may feel like: Why does this happen? After SCI, the nerves below the level of injury can misfire, sending faulty pain signals to the brain. This is due to: The sensation could be triggered or […]