If you have any thoughts or want to know more about anything relating to dealing with or living after a spinal cord tumour please get in touch with us. We would be happy to research and publish on your behalf.
...Living with or after surgery for a spinal cord tumour often means your energy and walking ability can change from day to day. One day you feel reasonably steady, the next your legs feel heavy, slow, or difficult to control. This isn’t just normal tiredness. It’s neurological fatigue and learning...
A message for anyone recently diagnosed with an intramedullary or extramedullary spinal cord tumour If you are reading this, it is likely that you or someone close to you has recently been told you have a spinal cord tumour. That moment can feel overwhelming, frightening, and deeply uncertain. Many people...
As the year gently folds itself away and the festive season arrives, we want to pause and speak directly to you, our spinal cord tumour survivors, carers, families, and friends. Living with the long-term effects of a spinal cord tumour can make this time of year physically demanding and emotionally...
We are pleased to launch this newly designed website for the Spinal Cord Tumour Forum. We have added to our Blog page and have introduced a News page There will be further additions to the website in the future.
Our aim is to provide interesting and useful information and advice about spinal cord tumours, and, more importantly, the impact on those it affects and that life can and does carry on.
The Spinal Cord Tumour Forum is a support group for people who have a benign spinal cord tumour or are living with its effect after surgery. This support group was created by and is run by spinal cord tumour sufferers.
These tumours can cause huge problems even if they are benign as they can damage nerves and disturb the functions of different parts of the body. These effects can sometimes be long term even if surgery to remove the tumour has been successful.
Tumours which grow in the spinal cord are rare. For many users of this website this will be their first contact with another sufferer and we would like to give them this opportunity to reach others and to share their experiences and gain access to useful information.
Please read some of your stories or see the further options below for ways to find out more…
We recently received some feedback from a Facebook member of our SCT Forum. “Thank you so much for the website. This was one of the first places I found and brought me to here [SCT Forum Facebook]. Thank you so much too the contributors of the website , it’s an
We are looking for a volunteer to assist with our editorial of the website. It will involve sourcing, researching and publishing posts here. The publishing to the website is easy to do and we can show you how to do that. So if you have a few spare hours a
The Spinal Cord Tumour Forum has been away for a while but we are now back and have made some changes to the website. We hope you will find our new website informative and interesting.
