Nerve Signals After Surgery – Possible Benefits of Functional Electrical Stimulation [FES]
Not everyone has surgery for their spinal cord tumour. As each case is very much individual and how it is subsequently treated. If you did have surgery like myself, followed by radiotherapy, then you may have experienced nerve damage as a result. Again, how you recuperate post operative is very much an individual medical case. […]
We are 1 year old!!
This weekend marks the first anniversary of the relaunch of our website. We would like to thank everyone involved and most of all to our visitors. We hope you continue to find our website informative and relevant. Our aim is ultimately to support anyone recently diagnosed through to those who have lived with the condition […]
How to cope in any warm weather
Heat can significantly affect people with spinal cord injuries (SCI), including any residual spinal cord damage from spinal cord tumour compression. If you feel you get sluggish, “funny” legs it is actually a well-known phenomenon, known as Uhthoff’s Phenomenon. 1. Nerve Signal Disruption from Heat What it is: A temporary worsening of neurological symptoms when […]
Website Feedback
We recently received some feedback from a Facebook member of our SCT Forum. “Thank you so much for the website. This was one of the first places I found and brought me to here [SCT Forum Facebook]. Thank you so much too the contributors of the website , it’s an amazing resource and support. So […]
Updated stories – Paul
Another of our updated Your Stories – to read Paul’s update click here
Looking for Updated Stories
If anyone would like us to publish an update on their original stories or alternatively would like us to publish their story / experience regarding a spinal cord tumour please get in touch with us here. To start us I have updated my story this month. To read my update and original story click Paul’s […]
ReConnected – Spinal Cord Tumour Stories
REConnected Channel contains a series of interviews with people who have been affected by a spinal cord tumor diagnosis. To find out more click on the link here which takes you to a YouTube channel.
June 10th International Ependymoma Day
Ependymoma is a rare primary brain or spinal cord tumour diagnosed in children and adults. Ependymoma Awareness Day (EAD) was established in 2012 by the CERN Foundation as part of a global effort to shine a light on this poorly understood disease. Held on June 10th, Ependymoma Awareness Day brings attention to the unique challenges […]
Romien’s journey
Romien has written her story about her Ependymoma SCT. Romien is from South Africa and was diagnosed in 2017. She has also produced a book and has a You Tube video detailing her experiences. Please click here if you would like to view them.
CERN Foundation
The Collaborative Ependymoma Research Network (CERN) Foundation is a dedicated group of scientists working in concert to develop new treatments, improve the care of all patients, ultimately leading to a cure for ependymoma. Visit the Collaborative Ependymoma Research Network (CERN) Foundation website Ependymoma Guide
Anatomy of the Spinal Cord System
To find out more about how the human spinal cord nervous system there is an easy to understand guide on the following website
Neuromodulation: The first step towards a cure? Zoom Webinar
Spinal Research invite you to their upcoming webinar, Neuromodulation: The first step towards a cure?, where we’ll explore the groundbreaking findings from the Pathfinder2 trial and discuss what’s next for spinal cord injury research. The date is Monday 10th March 6 to 7pm online via Zoom. For access to the link please click here