Young Harry overcomes spinal cord tumour
Harry was diagnosed with a glioneuronal spinal cord tumour at the age of ten. He was operated on at King’s College London and managed to get back walking again after successfully operated on. It is amazing how children and young people can recover from our conditions much quicker. Well done Harry! For further details on […]
Pathfinder 2 Trial Electrical Conduction
The study, which involved 10 people between 21 and 68 with varying levels of spinal cord injury, aimed to assess new technology that works by stimulating the “dormant” spine below the patient’s injury with electrical pulses. This was then combined with intensive tailored physical therapy. For further details please refer to the following news article […]
New website links
There are some new links on the Links Page and we hope you will find them interesting. If you have any comments about any of them please send us a message. Click here to go directly to the page.
National Spine Health Foundation
A health website with lots of informative articles and research regarding the spine and spinal cord. In particular there are a number of links relatable to our common conditions and well being tips. The links to these are below – https://www.spine-health.com/conditions/spinal-tumor/types-spinal-tumors 30 Tips for Spine Health Prevention and Wellness https://spinehealth.org/article/spine-health-wellness/
We are looking for help!
We are looking for a volunteer to assist with our editorial of the website. It will involve sourcing, researching and publishing posts here. The publishing to the website is easy to do and we can show you how to do that. So if you have a few spare hours a month and are passionate about […]
Duloxetine – can it help with your nerve pain?
Duloxetine is a medication commonly prescribed for the treatment of nerve pain, also known as neuropathic pain. It belongs to a class of drugs called serotonin-norepinephrine reuptake inhibitors (SNRIs), which work by increasing the levels of serotonin and norepinephrine in the brain. This mechanism helps to alleviate pain and improve mood. It helps with central […]
Electric pulses may ease paralysis after broken neck
Article on the BBC website about electrical impulses helping people with spinal cord injuries Click on the link https://www.bbc.co.uk/news/articles/c4n1g7dr48go
Welcome to our Relaunch
The Spinal Cord Tumour Forum has been away for a while but we are now back and have made some changes to the website. We hope you will find our new website informative and interesting.
Intensive Physio Neuro Rehabilitation: Is it worth it?
I had an astrocytoma C4-C6 spinal cord tumour removed back in 2001, when I was aged twenty-seven. Without going into all the details, I was left with weakness in both legs, particularly my right, trunk instability and a weakened right hand. I have also suffered from several types of nerve pain problems, sensations of heaviness […]
1 in 6 is living with a neurological condition
1 in 6 people in the UK live with a neurological condition. A neurological condition is any condition that affects the brain, spinal cord and/or nerves. Spinal cord tumours [ SCT] are amongst one of the rarest of neurological conditions that can affect people. Each person affected by a SCT tends to follow their own unique journey […]
Christine’s Story
Hasn’t had surgery People said to me “Chris, just have the surgery and get it over and done with”. If only it were as simple as that! In Oct 2013 I was told I had a sacral tumour at S1/S2, the pelvic area. The 5 ½ cm tumour has been biopsied as a Grade 1 […]
Helen’s Story
My operation (July 2001) made a fantastic difference in that I could walk again – after surgery the main problem was with my right arm, as root nerves were cut out during the operation, and have been left with a throbbing pressure 24/7 in my arm and hand with some restriction in movement. Residual tumour […]