Ian’s Story
My problems started in Jan 2007, my right foot felt cold to me but was warm to the touch. I went to see my g.p. who in turn sent me to see an orthopaedic consultant, he sent me for a m.r.i. scan after which I went to see the consultant again and he told me […]
Phil’s Story
Schwannoma – Intradural Tumor L5 & T2 My story started approximately 3 years ago when I went to the doctor because I had pain in my right leg, initiallystarted around my hamstring but with time moved further down my leg. Following my examination I was told Iactually had sciatica and went for a number of […]
Carolyn’s Story
I was first diagnosed in 2008 after having back pain since July 2007 following slipping on a wet floor. I had difficulty abducting my right leg but once my primary symptoms settled down I still had this awful back ache that didn’t seem to respond to anything. As a nurse I was used to back […]
Donna J, Perth, Australia
I was diagnosed with a Spinal Cord Lipoma in July 2014. A congenital condition as it turns out. Lipomas can appear anywhere in your body, under your skin, in your arm pit – guess I was extremely (un)fortunate to have one in my Spinal Cord! Of all of the Spinal Cord Tumours out there (which […]
Donna’s Story
Benign Meningioma at C2/C3 My story officially began on 6th December when I received a phone call from my GP telling me I had a tumour just below my brain and it was serious but he didn’t know how serious. I had been suffering from ongoing neck pain for a considerable period of time, about […]
Lesley’s Story
In 1987 one Saturday morning the phone rang downstairs and I got out of bed and fell straight to the floor. Thinking that I just got out of bed too quickly, I got up and carried on to the top of the stairs where my leg just gave way again. I fell to the bottom […]
Sarah’s Story
In December 2013 I was diagnosed with having a “suspected” juvenile pilocytic astrocytoma” or “Ependymoma” located at my T4/T5, it fills the entire cord and space. Currently I am a watch and wait patient and very happy with my consultant. I’ve already waited one year and had my follow up MRI only August 2014 where […]
Stevie’s Story
Benign tumour in the lower back (L3/L4) – pain-free again! It’s wonderful to think that I forget that this time last year I was in agony…….. Like many people I try to keep fit and healthy. I enjoy exercising and eating relatively sensibly so it was a shock to me when more or less out of […]
Sean’s Story
I had started experiencing lower back pain and extreme pain in my right leg for around two years from 2008. I went to the GP and was told that I was getting old (in my mid forties!). I returned to my GP a few months later and was sent for an X-ray which revealed that […]
Adrian’s story
Spinal cord tumours change your life in some way forever. In my case I would say that my outlook on life has changed forever but physically I came through the experience relatively unscathed and in that sense I can offer some hope to those that are facing the dilemma of whether to have the operation […]
Melissa’s story
My spinal cord tumour journey began in October 2005, aged 25. After about 2 years of problems with hip and backache and falling over because of weak legs, the doctors finally realised something serious may be wrong and I was referred to a neurologist. After numerous tests and an MRI scan, I was told that […]
Clive’s story
Spinal cord tumours can occur in men as well. I had a C1-C5 ependymoma removed in 1995. Since around 1991 I had been experiencing bad neck pain which increasingly failed to respond to analgesics. Unfortunately, this was misdiagnosed as a “trapped nerve”. But after a few years of non-responsiveness to traction, electro-therapy, massages and even […]