Blog

one year anniversary picture

We are 1 year old!!

This weekend marks the first anniversary of the relaunch of our website. We would like to thank everyone involved and most of

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Romien’s journey

Romien has written her story about her Ependymoma SCT. Romien is from South Africa and was diagnosed in 2017. She has also produced

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New website links

There are some new links on the Links Page and we hope you will find them interesting.  If you have any comments

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