Moataz’s story
Moataz tells the story about how he was diagnosed with a spinal cord Schwannoma
Honey’s Story
What a difference an MRI makes! With so few in the UK in 1989, it was moving to the States, where there were many more, that saved me from a lifetime in a wheelchair and enabled me to run with my little boy for the first time in his life.
Liz’s Story
In 2007 (aged 47 ) I noticed my little finger on my right hand hurt also my legs felt like Jelly when walking at night time . I didn’t do anything at first hoping it would go away , in the back of my mind I was dreading it was MS. Then my hands went […]
Read about an American survivor of a SCT
We recently came across a book on Amazon written by an American lady called Dawn Standera who underwent an operation to remove an intremudullary spinal cord tumour in 2017, and her subsequent road to recovery. For anyone interested in buying her book the link to the Amazon store is here
Our Facebook page
We set up our Facebook page more than a year ago and it has proved very popular with our followers. We now have more than a hundred members.
About the Spinal Cord Tumour Forum
The Spinal Cord Tumour Forum is a support group for people who have or have had a benign spinal cord tumour.
The Hidden Effects of a Spinal Cord Injury
An interesting article in the bbc news online recently about a paraglider who suffered an incomplete spinal cord injury in an accident rather than a spinal cord tumour. However the article emphasises the “hidden” issues that similar central nerve damage can cause but most people are not aware that this can happen. It is also […]
Brain and Spine Foundation Spinal Tumours Booklet
The Brain and Spine Foundation produced an informative booklet in 2017 on spinal tumours which is still relevant today. The aim over the coming months is to build on further advice, guidance and support for people who have had a spinal cord tumour. The link to the booklet is here
Brain & Spine Foundation
Brain & Spine Foundation The Brain and Spine Foundation develops research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine
The Och Spine Hospital at the Neurological Institute of New York
The Och Spine Hospital at the Neurological Institute of New York The Och Spine Hospital at The Neurological Institute of New York, associated with Columbia University Irving Medical Center and New York Presbyterian Hospital, is dedicated to the evaluation and treatment of patients suffering from disorders of the spine and spinal cord. Recognized around the […]
The Neurological Alliance
The Neurological Alliance The Neurological Alliance enables charities to work together to improve the quality of life of all those in the UK living with a neurological condition.