Your Stories

If you would like to contact us to tell us your story, we would be very happy to hear from you.

Also, let us know if you would like your story to appear on our website. Please drop us a line if you have comments on any of our stories. Perhaps you have been affected in the same way?

Stevie’s Story

Benign tumour in the lower back (L3/L4) – pain-free again! It’s wonderful to think that I forget that this time last year I

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Sean’s Story

I had started experiencing lower back pain and extreme pain in my right leg for around two years from 2008. I went

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Adrian’s story

Spinal cord tumours change your life in some way forever. In my case I would say that my outlook on life has

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Melissa’s story

My spinal cord tumour journey began in October 2005, aged 25. After about 2 years of problems with hip and backache and

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Clive’s story

Spinal cord tumours can occur in men as well. I had a C1-C5 ependymoma removed in 1995.  Since around 1991 I had

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Lisa’s story

In January 2005 I sneezed and I remember a shooting pain run down my shoulder and arm. A few months later I

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Megan’s story

My only symptoms in august 1996 were the third finger of my left hand itching constantly. After tests for carpel tunnel proved

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Paul’s Story

UPDATED – My Story April 2025 It has been over fourteen years since I initially composed my story below in 2011. Since

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Carole’s Story

In 1989 I had an operation to remove a spinal cord tumour (ependymoma, C6-T1). I was told it had probably been lying

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Alison’s story

I was 40 in 2003 and had been suffering from a ‘crunchy’ painful neck and some loss of sensation in my finger

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