Christine’s Story
Hasn’t had surgery People said to me “Chris, just have the surgery and get it over and done with”. If only it were as simple as that! In Oct 2013 I was told I had a sacral tumour at S1/S2, the pelvic area. The 5 ½ cm tumour has been biopsied as a Grade 1 […]
Helen’s Story
My operation (July 2001) made a fantastic difference in that I could walk again – after surgery the main problem was with my right arm, as root nerves were cut out during the operation, and have been left with a throbbing pressure 24/7 in my arm and hand with some restriction in movement. Residual tumour […]
Ian’s Story
My problems started in Jan 2007, my right foot felt cold to me but was warm to the touch. I went to see my g.p. who in turn sent me to see an orthopaedic consultant, he sent me for a m.r.i. scan after which I went to see the consultant again and he told me […]
Phil’s Story
Schwannoma – Intradural Tumor L5 & T2 My story started approximately 3 years ago when I went to the doctor because I had pain in my right leg, initiallystarted around my hamstring but with time moved further down my leg. Following my examination I was told Iactually had sciatica and went for a number of […]
Carolyn’s Story
I was first diagnosed in 2008 after having back pain since July 2007 following slipping on a wet floor. I had difficulty abducting my right leg but once my primary symptoms settled down I still had this awful back ache that didn’t seem to respond to anything. As a nurse I was used to back […]
Donna J, Perth, Australia
I was diagnosed with a Spinal Cord Lipoma in July 2014. A congenital condition as it turns out. Lipomas can appear anywhere in your body, under your skin, in your arm pit – guess I was extremely (un)fortunate to have one in my Spinal Cord! Of all of the Spinal Cord Tumours out there (which […]
Donna’s Story
Benign Meningioma at C2/C3 My story officially began on 6th December when I received a phone call from my GP telling me I had a tumour just below my brain and it was serious but he didn’t know how serious. I had been suffering from ongoing neck pain for a considerable period of time, about […]
Lesley’s Story
In 1987 one Saturday morning the phone rang downstairs and I got out of bed and fell straight to the floor. Thinking that I just got out of bed too quickly, I got up and carried on to the top of the stairs where my leg just gave way again. I fell to the bottom […]
Sarah’s Story
In December 2013 I was diagnosed with having a “suspected” juvenile pilocytic astrocytoma” or “Ependymoma” located at my T4/T5, it fills the entire cord and space. Currently I am a watch and wait patient and very happy with my consultant. I’ve already waited one year and had my follow up MRI only August 2014 where […]
Stevie’s Story
Benign tumour in the lower back (L3/L4) – pain-free again! It’s wonderful to think that I forget that this time last year I was in agony…….. Like many people I try to keep fit and healthy. I enjoy exercising and eating relatively sensibly so it was a shock to me when more or less out of […]
Sean’s Story
I had started experiencing lower back pain and extreme pain in my right leg for around two years from 2008. I went to the GP and was told that I was getting old (in my mid forties!). I returned to my GP a few months later and was sent for an X-ray which revealed that […]
Adrian’s story
Spinal cord tumours change your life in some way forever. In my case I would say that my outlook on life has changed forever but physically I came through the experience relatively unscathed and in that sense I can offer some hope to those that are facing the dilemma of whether to have the operation […]