The Spinal Cord Tumour Forum

Benign Spinal Cord Tumour Support & Information

If you would like to contact us to tell us your story, we would be very happy to hear from you. Also, let us know if you would like your story to appear on our website. Please drop us a line if you have comments on any of our stories. Perhaps you have been affected in the same way.


I was first diagnosed in 2008 after having back pain since July 2007 following slipping on a wet floor. I had difficulty abducting my right leg but once my primary symptoms settled down I still had this awful back ache that didn't seem to respond to anything.

Schwannoma - Intradural Tumor L5 & T2

My story started approximately 3 years ago when I went to the doctor because I had pain in my right leg, initially
started around my hamstring but with time moved further down my leg. Following my examination I was told I
actually had sciatica and went for a number of physiotherapy sessions and was advised to exercise on a regular basis, apparently walking was ideal.

I was diagnosed with a Spinal Cord Lipoma in July 2014. A congenital condition as it turns out. Lipomas can appear anywhere in your body, under your skin, in your arm pit – guess I was extremely (un)fortunate to have one in my Spinal Cord!